Retroperitoneal Fibrosis
Retroperitoneal Fibrosis
Services
You are not as alone as you may feel. We believe that the best information, and education on this disease, comes from those who have experienced it personally. Below we provide links to others who are more than willing to listen to your questions, stories or concerns.
Yahoo RPF Support Group
The Yahoo RF group has been around for several years. It started with only one member and now has several hundred. All members are very friendly and willing to help in any way they can. Here you will also find helpful information in the Database link
E-Pal email exchange
This page is for the exchange of email address of those wishing to correspond with others affected by Retroperitoneal Fibrosis and similar rare diseases.
Experienced doctors
The doctors listed here have been submitted by others with Retroperitoneal Fibrosis. A seperate list may also be found in the main Yahoo Support Group Database. We do not have direct knowledge of these physician's experience or practice. But because it is so hard to find doctors who have treated this disease, we felt this page to be helpful.
Retroperitoneal Fibrosis
